Update on Siahna

I thought I would give you an update on Sisi Lou since it has been awhile.  In January we saw a genetic specialist who recommended three tests.  We had them done only to find out that one test was ordered incorrectly.  After weeks of talking to nurses and our Dr. talking to Children's, it was finally straightened out  and we had the test redone in May.  A few weeks ago, we got a call from the Dr. that the test came back normal.  Good news.  However, when we got home from camping over the 4th of July, we had a letter in the mail from Children's stating that once again the wrong test had been performed.  Grrr!  They did state that there was enough evidence in this test to show that what they were looking for was not there and no further re-testing is needed.  Seriously, how hard is it to order a test.

Anyway, the good news is that she does not have any genetic defects that they were looking for.  We have decided that our time at Children's is done and over and will not do further testing.  I believe that she is fearfully and wonderfully made and created just like this for a good purpose. 

Things to pray for:
*Although we've decided not to do further testing, we want to be open to the doctor's advice & wisdom and have wisdom ourselves to know what is best for her.
*Siahna whines a good chunk of the day.  I believe it's due to her being unable to communicate and this is her way of communicating.  We pray for her understanding vocabulary to continue to grow and that her verbal communication will start soon!
*Stability on her feet - although she's been walking for 2 1/2 months, she still walks like a drunkard!  We pray for stability and steadfastness on her feet.
*Verbal - that she'll start talking soon.  We've come to realize that sign language has very similar signs and although she's signing more, all of her signs are the same because the signs we've taught her are so similar.  If we could go back and do it again, we would have made up our own sign language and made the signs more different from each other.

*Me - like any toddler, Siahna is busy to say the least.  I am often worn out and fed up with her by the time Jeff gets home from work.  Pray for patience.